Monthly Archives: August 2011

ALS and mom update

Hello everyone,

I was reading over some of my old posts and realized that I kind of left interested parties hanging when it came to my mom and her health conditions. When I last blogged my mom was in denial about having ALS- that has changed. She has fully accepted her condition now and says that she has no choice but to because of the rapid changes taking place in her body. She cannot run or even walk very fast, she’s winded when she tries to walk a block and the pain is getting worse in her throat. She recently went to an ALS clinic and they advised her to get a walker. Of course she doesn’t want to do that but she may have no choice. She is also planning to resign from both of her jobs. She just doesn’t think her body can take the physical strain of it anymore. I fully support her in this and my husband and I have offered for her to move in with us if that is what she needs. (Though she is very proud and seems to prefer going to an assisted living facility).

This past weekend we had a family meeting where she talked about granting me power of attorney to make decisions for her since she is pretty confident that her voice is going to leave her soon. This whole thing is sad and heartbreaking but insha’allah I still feel like I can handle it. After all, what choice do I really have? My mother and I haven’t had the best relationship and time hasn’t improved it much. However, I do hope that we can spend her last months or years mending this broken relationship as much as possible. Allah knows best…